Rocky Mountain Rett Association is a member-based organization serving the Rocky Mountain region dedicated to improving the quality of life for girls and their families impacted by Rett Syndrome. We achieve this by providing supportive services and resources to girls and their families, engaging in advocacy, education and awareness efforts, and raising funds to support the search for a cure and improved treatment options.
In 2005, Colorado family & friends of girls with Rett Syndrome started to raise funds to support national Rett organizations-- supporting research aimed at finding a cure for Rett Syndrome and improving the quality of life for girls and women living with Rett Syndrome. After several successful years of organizing and fundraising, Colorado Rett families and friends determined they wanted to create an organization that would allow them to better direct the investment of funds raised, while better meeting local needs. In 2009, the Rocky Mountain Rett Association was incorporated as a Colorado not for profit corporation and subsequently earned tax exempt status under tax code 501(c)3. 2010 represented the first full year of operations, with a volunteer board of 15 directors and a slate of 4 officers.