Rocky Mountain Rett Association

Rocky Mountain Rett Association is dedicated to improving the quality of life for children and their families impacted by Rett Syndrome and Rett-like diseases.

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General Information

General
Official Name
Rocky Mountain Rett Association​​​​​​​
DBA/Trade Name(s)
N/A
Former Name(s)
N/A
Acronym
RMRA
Date Established
2009
Offers Additional Colorado State Tax Credit
None
Tax ID
26-4698552
Addresses
Headquarters Address
P.O. Box 1294
Morrison, CO 80465
Colorado Location
N/A
Mailing Address
N/A
Phone/Fax
Main Phone Number
307-751-5792
Fax Number
N/A
Other Phone Number
N/A
Web/Email
Email
info@rmrett.org
Website
www.rmrett.org
Social Media Links
 

Mission Statement

Rocky Mountain Rett Association is dedicated to improving the quality of life for children and their families impacted by Rett Syndrome and Rett-like diseases. We achieve this by providing supportive services and resources to children and their families, engaging in advocacy, education and awareness efforts, and raising funds to support the search for a cure and improved treatment options.

Organization History

In 2005, Colorado family & friends of girls with Rett Syndrome started to raise funds to support national Rett organizations-- supporting research aimed at finding a cure for Rett Syndrome and improving the quality of life for girls and women living with Rett Syndrome. After several successful years of organizing and fundraising, Colorado Rett families and friends determined they wanted to create an organization that would allow them to better direct the investment of funds raised, while better meeting local needs. In 2009, the Rocky Mountain Rett Association was incorporated as a Colorado not for profit corporation and subsequently earned tax exempt status under tax code 501(c)3. 2010 represented the first full year of operations, with a volunteer board of 15 directors and a slate of 4 officers.

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