Rocky Mountain Rett Association

Rocky Mountain Rett Association is dedicated to improving the quality of life for children and their families impacted by Rett Syndrome and Rett-like diseases.

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General Information

General
Official Name
Rocky Mountain Rett Association​​​​​​​
DBA/Trade Name(s)
N/A
Former Name(s)
N/A
Acronym
RMRA
Date Established
2009
Offers Additional Colorado State Tax Credit
None
Tax ID
26-4698552
Addresses
Headquarters Address
P.O. Box 1294
Morrison, CO 80465
Colorado Location
N/A
Mailing Address
N/A
Other Address
P.O. Box 1294
Morrison, CO 80465
Phone/Fax
Main Phone Number
307-751-5792
Fax Number
N/A
Other Phone Number
N/A
Web/Email
Email
info@rmrett.org
Website
www.rmrett.org
Social Media Links
 

Mission Statement

The Rocky Mountain Rett Association is dedicated to improving the quality of life for children and their families impacted by Rett Syndrome. We provide resources, engage in advocacy, education and awareness efforts, and raise funds to support the search for a cure and to run the Rett Clinic at Children's Hospital Colorado.

Organization History

In 2005, Colorado family & friends of children with Rett Syndrome started to raise funds to support national Rett organizations-- supporting research aimed at finding a cure for Rett Syndrome and improving the quality of life for children living with Rett Syndrome. After several successful years of organizing and fundraising, Colorado Rett families and friends determined they wanted to create an organization that would allow them to better direct the investment of funds raised, while better meeting local needs. In 2009, the Rocky Mountain Rett Association was incorporated as a Colorado not for profit corporation and subsequently earned tax exempt status under tax code 501(c)3.

In 2010, a video submitted by Family Benjamin for the Sears One Billion Points Video Contest, yielded in over $400K in Sears gift cards and cash and RMRA was able to create the Rett Clinic in collaboration with the Children's Hospital Colorado. Since then, RMRA board, donors and volunteers have fund raised to cover the operations of the Clinic, which is open now every month for either for new patient visits and follow up visits. The Rett Clinic is truly unique in that it is a multi-disciplinary clinic where patients can see up to 15 Rett specialists in one convenient place.

In 2017 the Rett Clinic received the Center of Excellence Award by Rettsyndrome.org. RMRA funds the operational costs of $75,000/year and is asking for donations to keep offering this special clinic. Thank you!

Testimonials

"The Rett Clinic was a well-oiled machine, where doctors, therapists, nutritionists, social workers and nurses gave suggestions on how to improve Tatum's quality of life."
-Tania Moore

Key aspects of this profile information have been reviewed by Community First Foundation staff. Each organization is exclusively responsible for the content that appears on the profile page. Community First Foundation offers general guidance as to the purpose of each area but does not require or encourage charities to include anything in particular in each section.