The Rocky Mountain Rett Association is dedicated to improving the quality of life for children and their families impacted by Rett Syndrome. We provide resources, engage in advocacy, education and awareness efforts, and raise funds to support the search for a cure and to run the Rett Clinic at Children's Hospital Colorado.
In 2005, Colorado family & friends of children with Rett Syndrome started to raise funds to support national Rett organizations-- supporting research aimed at finding a cure for Rett Syndrome and improving the quality of life for children living with Rett Syndrome. After several successful years of organizing and fundraising, Colorado Rett families and friends determined they wanted to create an organization that would allow them to better direct the investment of funds raised, while better meeting local needs. In 2009, the Rocky Mountain Rett Association was incorporated as a Colorado not for profit corporation and subsequently earned tax exempt status under tax code 501(c)3.
In 2010, a video submitted by Family Benjamin for the Sears One Billion Points Video Contest, yielded in over $400K in Sears gift cards and cash and RMRA was able to create the Rett Clinic in collaboration with the Children's Hospital Colorado. Since then, RMRA board, donors and volunteers have fund raised to cover the operations of the Clinic, which is open now every month for either for new patient visits and follow up visits. The Rett Clinic is truly unique in that it is a multi-disciplinary clinic where patients can see up to 15 Rett specialists in one convenient place.
In 2017 the Rett Clinic received the Center of Excellence Award by Rettsyndrome.org. RMRA funds the operational costs of $75,000/year and is asking for donations to keep offering this special clinic. Thank you!
"The Rett Clinic was a well-oiled machine, where doctors, therapists, nutritionists, social workers and nurses gave suggestions on how to improve Tatum's quality of life."