PPROM is a serious pregnancy complication that occurs in 4 of 100 pregnancies. PPROM is the leading identifiable cause of preterm birth in the United States, impacting approximately 40% of all premature deliveries. Our three-pronged focus includes Advocacy, Partnerships, and the PPROM Registry.
"I want to extend my sincerest appreciation to The PPROM Foundation. When I had no hope, they had hope for me. They taught me to advocate for myself and my baby. My story did not have a the desired outcome, but I have no regrets. I know that my baby lived, and that she was given every chance to do so. She is forever loved and missed." - Liz M.
"As a social worker in a high-risk OBGYN practice, I have observed that patients with preterm PROM who have a robust support network of peers are better prepared for all possible outcomes. Strong social and emotional support for families exercising EM (Expectant Management) is crucial. The PPROM Foundation fills in the gap in treatment, providing person-centered peer support for families." -Anna K.
"My wife and I are forever grateful for the work The PPROM Foundation is doing. We hope that someday there will be a treatment or intervention to help other families. A lot of our experience is negative because we lost our son Emmett. My wife had an infection and nothing could be done. I'm thankful that I didn't lose [my wife] too. At least our loss is not in vain, and others may someday benefit from our situation through research and innovation." - Chris C.
"had PPROM at 27 weeks with MO/DI twins. I went to the local hospital, then sent to a bigger hospital when they realized I would have the babies early. I had to go to a hospital in another state 6 hours from home and had absolutely no friends or family with me for the two weeks I was hospitalized. I was so stressed out. My nurse said that there were online support groups that I should join. I started working with PPROM Foundation and met a PPROM mom who lived in the town. She was my lifeline and helped me feel as comfortable as possible with the situation. My twins were born at 29 weeks and 2 days and were in the neonatal unit for 78 days. I stayed at the Ronald McDonald House and kept in contact with ladies who supported me during the pregnancy. The twins came home almost a year ago and have been meeting all of their milestones. I'm still a bit traumatized by their birth, but I know I'm not alone." -Chelsea O.
"I've lost several pregnancies in the first trimester. I was pregnant with my rainbow baby when I started leaking fluid. I found a list of doctors recommended by other
moms on The PPROM Foundation website. I got an appointment right away and got checked out. I resealed around 25 weeks and had my son at 35 weeks. Thanks to all the mommas who gave their perspective and strength to me." - Latisha W.
Providing resources & support for those experiencing Preterm Premature Rupture of Membranes (PPROM) in pregnancy & beyond.
Preterm Premature Rupture of Membranes (PPROM) is the leading identifiable cause of preterm birth. PPROM is a serious pregnancy condition that impacts 140,000 women in the United States annually. In addition to raising awareness about PPROM, we provide resources and support to families and work with providers and professional organizations to improve outcomes for our families. We also collect data in a patient registry to help fully understand what causes PPROM, how it is currently being managed and treated, and work to identify future research opportunities.
The PPROM Foundation (American Alliance for PPROM Support) was started in 2013 by Erin and James Thatcher of Colorado. Erin's water broke (PPROM) with baby B of twins at 12 weeks. Erin stayed pregnant for 104 days or 15 weeks without amniotic fluid for one of the twins, and delivered via c-section after going into labor naturally at 27 weeks. The twins spent several months in the Neonatal Intensive Care Unit (NICU) and went home on oxygen. Today they are thriving and active grade schoolers. Recognizing the need for a more specific and focused organization supporting PPROM parents, this organization was founded to promote Advocacy, Partnerships, and the PPROM Registry.
Organization name
The PPROM Foundation
other names
American Alliance for PPROM Support
2013
Tax id (EIN)
46-3250661
Category
Diseases, Disorders & Medical Disciplines
Organization Size
Small Organization
Address
PO Box 179Jefferson County, CO, US