The PPROM Foundation is a parent-led nonprofit organization and public charity providing resources and support to people impacted by Preterm Premature Rupture of Membranes (PPROM).
PPROM is a serious pregnancy complication affecting approximately 150,000 pregnancies in the United States each year and is associated with approximately 1 in 3 preterm births.
A PPROM diagnosis can bring sudden uncertainty, hospitalization, difficult medical decisions, premature birth, NICU care, pregnancy or infant loss, and long-term effects for parents and families.
Since 2013, The PPROM Foundation has worked to make sure families do not have to navigate PPROM without information, resources, and a voice.
Your support helps us:
provide PPROM-specific education and resources for parents and families;
increase awareness through PPROM Awareness Month and public education;
bring parent and family lived experience into healthcare, professional education, and advocacy;
support research and the PPROM Patient Registry;
connect families with information about pregnancy care, premature birth, NICU care, emotional support, and loss; and
advocate for greater recognition of PPROM and the needs of affected families.
Every PPROM experience is different. Every family deserves accurate information, compassionate support, and the opportunity to be informed and involved in their care.
Your donation helps The PPROM Foundation continue this work for families experiencing PPROM today and helps build greater understanding for families in the future.
The PPROM Foundation aims to provide resources and support for those who have experienced Preterm Premature Rupture of Membranes (PPROM) in their pregnancy and beyond.
We promote awareness of PPROM through:
Advocacy in Expectant Management, conducted by PPROM parents through support groups and individual consultations.
Partnerships with healthcare providers, hospitals, and organizations who support maternal, fetal / neonatal health, research, and person-centered care in Expectant Management.
The PPROM Registry of individuals diagnosed with PPROM in pregnancy. This Patient-Reported Outcomes (PRO) registry is available to mothers who have concluded their PPROM pregnancy. We observe trends in expectant management, outcomes, and long term effects in survivors. Research partnerships available.
The PPROM Foundation was established in Colorado in 2013 by parents with lived experience of PPROM who recognized the need for an organization focused specifically on PPROM parents and families.
The Foundation has remained parent-led from the beginning. Lived experience continues to inform our education, awareness, advocacy, partnerships, and research.
Over the years, our work has grown to include parent and family resources, PPROM Awareness Month, state and federal advocacy, professional education and collaboration, research partnerships, and the PPROM Patient Registry.
Organization name
The PPROM Foundation
other names
American Alliance for PPROM Support
2013
Tax id (EIN)
46-3250661
Category
Diseases, Disorders & Medical Disciplines
Organization Size
Small Organization
Address
PO Box 179CO, US,
MD, US,