Background Statement
Family Voices Colorado (FVCO) is grassroots, not-for-profit organization with a deep connection to Colorado families who are navigating complex medical systems for their children.
FVCO has been around since 2002 supporting families across Colorado.
FVCO is a thriving organization, involved in many issues throughout CO related to children and youth with special health care needs (CYSHCN), including successfully working to obtain the largest increase in HCBS (Medicaid) waivers for CYSHCN (630 slots) onto two children' s waivers through the tobacco taxes in 2014. In 2020-22 FVCO hosted a pilot for children with deafblindness to experience their community through the use of Interveners, serving 15 families. In 2023 FVCO ran House Bill 23-1067, which passed and created a permanent community intervener program in the State of Colorado. 2023-2025 has seen huge growth for FVCO serving 3 times as many families so far in 2025 than we did in 2023.
With extensive changes scheduled to happen to the Colorado waivers in 2025 and 2026, FVCO is taking steps to be prepared to meet the demand for need.