Summary
Organization name
CureGRIN Foundation
2019
Tax id (EIN)
83-4658977
Category
Diseases, Disorders & Medical Disciplines
Organization Size
Medium Organization
Address
P.O. Box 2182Parker, CO 80134
Douglas County, CO, US
GRI Disorder is a rare genetic condition with severe life-limiting consequences. Many GRI patients are non-verbal, unable to walk, and many cannot feed or toilet themselves. They often suffer severe and frequent seizures that are not responsive to medical therapies.
Testimonials
We are working with leading scientists from prestigious institutions including National Institutes of Health (NIH) and University of Toronto to deploy a comprehensive research roadmap, beginning with our first grant to Emory University.
We also provide education and resources reaching over 400 families in 30+ countries around the world. Your support will have an impact on thousands of children who have been and will be diagnosed with a life-limiting GRI Disorder.
Mission
CureGRIN Foundation is a parent-led organization committed to improving the lives of people living with GRI Disorder. Our goal is to find cures and therapies for GRI Disorder.
GRI Disorder is caused by a change in one of several GRI genes including GRIN1, GRIN2A, GRIN2B, GRIN2D, GRIA1, GRIA2, GRIA3, GRIA4, and GRIK2. These genes contain the code to create NMDA receptors, which are essential for learning and memory. Most cases are de novo (not inherited from the parent) missense mutations where a single letter is "misspelled" among the 3.2-billion letters of human DNA.
Background Statement
CureGRIN is founded and lead by parents of those with GRI Disorder. As parents of children with a rare disease, we are primarily left alone to fight for our kids' future. We have formed a 501(c)3 to fund research into a cure for our kids through the CureGRIN Foundation.
Media gallery
Organization Data
Parker, CO 80134