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ALS Association-Rocky Mountain Chapter

With an average life expectancy of two to five years, people with ALS are aware of how precious every moment is. Please make a contribution to support those living with this devastating disease and help advance research in the fight against ALS

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ALS Equipment Learning Lab

Class

Health Care 

Beneficiaries

Adults
Aging/Elderly/Senior Citizens
Disabled, General or Disability unspecified
Physically Disabled

Description

The Learning Lab is a dedicated space designed and equipped with ALS-appropriate equipment and demonstration tools in a bedroom setting much like in anyone's home. The room consists of state-of-the-art equipment on which to demonstrate to patients, family members, caregivers, and ALS professionals the correct usage of most items they will need throughout the progression of ALS. A television and DVD player were added to air training videos in a "live" setting.

Photos

Evidence of Program's Success

Many family members have thanked us for the opportunity to be trained on intricate critical equipment for handling their loved one.

ALS Clinic

Class

Health Care 

Beneficiaries

Females
Males

Description

The ALS Clinic Program provides comprehensive care for people with ALS by utilizing a multidisciplinary team of ALS specialists: a neurologist, physiatrist, nurse, social worker, dietitian, occupational therapist, physical therapist, speech/language pathologist, and wheelchair seating specialist. In the future we hope to also include a respiratory therapist and augmentative communication specialist. Additional physicians specializing in issues that affect people with ALS may attend the clinic or work collaboratively with the center staff. This multidisciplinary approach has been proven to improve quality of life and prolong life for people with ALS

Photos

Evidence of Program's Success

The clinic runs at capacity every month with a wait list in place.

Respite Care Program

Class

Health Care 

Beneficiaries

Adults
Disabled

Description

The Respite Care Program Offers grant funding to ALS caregivers who need time away to tend to personal and professional tasks but need professional assistance in caring for their ALS patient. The grant presently affords $1,000 per patient per year.


Photos

Evidence of Program's Success

The program has seen continued growth in numbers over the past few years.

The Durable Medical Equipment Loan Program

Class

Health Care 

Beneficiaries

Adults
Disabled
Other Named Groups

Description

The Durable Medical Equipment Loan Program offers the use of needed medical equipment - wheel chairs, lifts and other assistive devices as the patient's needs progress.

We provide for basic daily needs - shower and commode chairs, eating utensils, etc. as well as larger more expensive equipment such as wheel chairs and lifts

At present, we have many types of wheel chairs - from the very basic and least expensive ($200) to the very intricate and costly ($30,000).

Photos

Evidence of Program's Success

As an ALS patient's physical needs change, typically very quickly, we are able able to meet their needs with specialized equipment at every stage of their progression - from the very basic to the most phycically challenging.

Because of our successes, in a show of appreciate, many patient families donate additional equipment in memory of their loved one to the association in hopes of helping others as they navigate the trials of this devastating disease.

Augmentative Communication Program

Class

Health Care 

Beneficiaries

Adults
General Public/Unspecified
Other Named Groups

Description

The Augmentative Communication Program lends or assists with the purchase of augmentative communication devices that are provided to those who lose the ability to communicate with their voice due to the progression of the disease.

Photos

Evidence of Program's Success

We rarely have communications equipment sitting and waiting for someone that has a need. Most often, the item will be returned from use, cleaned, checked out, and sent on to the next person within a very short time frame.

Personal Care Consultation

Class

Health Care 

Beneficiaries

Aging/Elderly/Senior Citizens
Disabled
General Public/Unspecified

Description

Personalized comprehensive information is provided on an ongoing basis about ALS disease progression, chapter services, equipment needs, home modifications, referrals for services in the community, caring for the caregiver, as well as Guidance at maneuvering the complex social and healthcare systems. Care consultations may occur in the home, the chapter office, or via phone or email.

Photos

Evidence of Program's Success

Our patients and families are constantly thanking us for providing information that would take them much needed precious time - time they do not have.

Key aspects of this profile information have been reviewed by Community First Foundation staff. Each organization is exclusively responsible for the content that appears on the profile page. Community First Foundation offers general guidance as to the purpose of each area but does not require or encourage charities to include anything in particular in each section.