Davis Phinney Foundation

The Davis Phinney Foundation is dedicated to helping people with Parkinson's live well today through our free programming, content, and quality of life research. Your generosity will help us inspire and educate people affected by Parkinson's, the fastest-growing neurological disease in the world.

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Charting Your Course: A Parkinson's Primer for the Newly Diagnosed

Class

Health Care 

Beneficiaries

Adults
Aging, Elderly, Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

Charting Your Course: A Parkinson's Primer for the Newly Diagnosed was designed to shorten the distance between three life-changing words-"You have Parkinson's"-and living well. Just a decade ago, researchers, clinicians, and people living with Parkinson's alike did not stress the importance of exercise, stress management, diet, and other positive life choices on Parkinson's. Today, we know that your experience can be impacted in a positive way by your choices and actions. The information we share in Charting Your Course is a way for you to learn about these actions without being overwhelmed by information.

Charting Your Course is designed as a four-week introduction to Parkinson's, with one lesson scheduled for each day. However, just as your Parkinson's journey is personal and unique to you, Charting Your Course allows you to choose your pace and is totally flexible. You will have access to all four weeks of content as soon as you register, and you can walk through the content in any order you wish.

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Evidence of Program's Success

Over 700 people have utilized this program since it was launched in July, 2021.

"I like your practical approach. I am not brand new to PD but when first diagnosed, I was also learning to be a caregiver for my aging mother and my learning about PD was more sporadic than organized or planned. When I saw this course, I was delighted to have a chance to start anew."

Quality of Life Research

Class

Diseases, Disorders & Medical Disciplines 

Beneficiaries

Adults
Aging/Elderly/Senior Citizen
At-Risk Populations
People/Families of People with Health Conditions

Description

The Davis Phinney Foundation his committed to funding research focused on improving the quality of life for people living with Parkinson's. Since beginning our research funding initiative in 2004, the Foundation has become known for funding innovative studies. Annually, we put out a call for grant applications and select the most important among them to fund, committing 10% of our revenue each year to research activities.

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Evidence of Program's Success

Guided by our Science Advisory Board, the Davis Phinney Foundation has supported more than 30 research studies focused on exercise, nutrition, gait, speech, telemedicine, alternative therapies, and other interventions that affect quality of life. Many of these studies have progressed to late-stage clinical research. Others have gone on to receive NIH and PCORI funding. While others have become therapies that are being used today by people living with Parkinson's.

Healthy Parkinson's Communities

Class

Health Care 

Beneficiaries

Adults
Aging, Elderly, Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

We are starting the Healthy Parkinson's Communities program to help inspire and support communities of any size-from neighborhoods to states-working to change how people live with Parkinson's. We're doing this because we know that living well with Parkinson's means having Parkinson's friendly streets to walk and bike on, access to nutritious food, access to information and care from a variety of specialists, health advocates who make their voices heard, a place or places to belong, and so much more.

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Evidence of Program's Success

By investing in communities, we aim to:
» Increase the capacity of Parkinson's community leaders to ensure they have the knowledge and resources they need to make sustained positive change in their community
» Inspire and support data-informed initiatives aimed at increasing access to and engagement with resources that improve quality of life for people with Parkinson's
» Increase awareness of and health literacy about Parkinson's to increase the sense of belonging for people living with Parkinson's as well as improve diagnosis and care outcomes for a diverse population

Every Victory Counts® manual

Class

Diseases, Disorders & Medical Disciplines 

Beneficiaries

Adults
Aging/Elderly/Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

First published in 2010, the Every Victory Counts® manual broke new ground as the only resource of its kind, devoted solely to the principle of proactive self-care and a holistic approach to managing Parkinson's. In subsequent editions, it has gained international recognition as a superb and comprehensive resource for changing the way people live with Parkinson's. Now in its sixth edition, the manual is the cornerstone of our new Every Victory Counts suite of resources, a robust collection of printed and digital manuals that embrace the Davis Phinney Foundation's philosophy of taking action to improve your quality of life with Parkinson's.

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Evidence of Program's Success

To date, approximately 40,000 copies of the Every Victory Counts manual have been distributed world wide.

"I've found that the binders that are handed out at the Symposiums are some of the best information around on Parkinson's."
-G. Cambell

"The binder of materials almost reminds me of a Parkinson's bible." -K. Yonak

"The manual is the most honest, insightful, inspirational, and genuinely helpful compilation of information I've seen about Parkinson's.  Every doctor who tells a patient they have Parkinson's should make sure that person leaves their office with an Every Victory Counts program manual. It's a support group in a book."
-T. Harrigan

The Victory Summit® Virtual Events

Class

Diseases, Disorders & Medical Disciplines 

Beneficiaries

Adults
Aging/Elderly/Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

The Victory Summit® Virtual Events series brings the Parkinson's community together for a moving day of information and inspiration. Internationally recognized researchers, clinicians, and physical therapists in the movement disorders field present on timely topics, focusing on the things people living with Parkinson's disease can do today to improve the quality of their lives. From learning about the latest research and treatment options to participating in demonstrations of yoga, speech therapy, exercise programs, and other activities, attendees experience an uplifting day of learning and connection. The Victory Summit events deliver up-to-date information and practical tools that people with Parkinson's can use to make lasting, positive impact on their wellness. Since its debut in 2008, The Victory Summit symposium has engaged tens of thousands of people affected by Parkinson's, including care partners and families.

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Evidence of Program's Success

"Thank you so much for this conference!  It was wonderful.  Please keep them going.  Very much needed.  Davis Phinney is so inspirational!"

"This gave me so many tools and resources. Grateful.  Loved how you coveered all arreas.  Plus some fun!"

"I gained much from the Victory Summit. The program was excellent lead by accomplished speakers. I look forward to the transcripts."

Ambassadors

Class

Diseases, Disorders & Medical Disciplines 

Beneficiaries

Adults
Aging, Elderly, Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

Founded in 2015, our Ambassador Leadership Program supports local community leaders, volunteers, and change-makers in their personal pursuits to help people with Parkinson's live well today. From speaking with individuals and families to presenting at conferences, sharing resources through exhibit tables, and participating in local, regional, and national advocacy, our Ambassadors are active, passionate volunteers changing how people live with Parkinson's.

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Evidence of Program's Success

As of October 2021, there are 66 Ambassadors in 36 states, and two regions in Canada.

Annually, our Ambassadors speak with thousands of individuals and families looking for support and community to help them live well with Parkinson's. Ambassadors are available to speak with constituents through email, phone, video conference, and in-person. You can look to connect with an Ambassador in your area or reach out to anyone who you think you would connect well with, regardless of location.

Living Well Today Webinar Series

Class

Diseases, Disorders & Medical Disciplines 

Beneficiaries

Adults
Aging/Elderly/Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

Our Live Well TODAY Webinar series covers topics important for people living with Parkinson's and care partners, including treatment, complementary therapies, mental health, relationships, and more.

Photos

Evidence of Program's Success

"This presentation is very informative. I appreciate the fullness on his explanations. I appreciate Dr. Savica's bringing his breadth of knowledge to his explanations."

"Thanks for today's webinar. I am the only single in my support group and was feeling very alone. This webinar was a morale booster. I'm looking forward to the transcript so I can better remember things."

""I know that when we spoke when I was initially diagnosed, you had told me about the Davis Phinney Foundation and I have to say, I have gotten more information from them and following all of their youtube videos than I have from any other Parkinson Foundation. I do know the Michael J Fox Foundation is the number one foundation that has raised the most funds for research, and push for other treatments and I love that, but I know that in our lifetime there will probably won't be a cure.

"For people like us, I have found that the Davis Phinney Foundation has not only helped me understand my disease more, but it also helps me learn and adjust to my ""new normal""."

Parkinson's Exercise Essentials: Getting Started, Staying Motivated, Seeing Results.

Class

Diseases, Disorders & Medical Disciplines 

Beneficiaries

Adults
Aging/Elderly/Senior Citizens
At-Risk Populations
People/Families of People with Health Conditions

Description

Parkinson's Exercise Essentials: Getting Started, Staying Motivated, Seeing Results developed by the Davis Phinney Foundation, is a first-of-its kind video that provides a range of workouts that can be modified for any level of fitness, from beginner to advanced, and can be performed at home, in a fitness center or out in the community.

More than an "exercise along" video, this program goes one step further and provides a road map that will teach you how to safely progress exercise activities over a period of years in order to help you stay motivated and derive the greatest benefit from your workouts.

The goals of this program are to respond to people with Parkinson's inquiry "how does one exercise for Parkinson's?" and to motivate them to integrate exercise into their therapeutic approach.

In this video, Matthew P. Ford, PT, PhD from The University of Alabama at Birmingham provides the guidance to help people with Parkinson's get started with fitness and shares a range of exercise approaches drawn from a broad body of research and his experience working with members of the Parkinson's community.

Thirteen men and women of different ages, living with various stages of Parkinson's disease, demonstrate a range of exercise routines and share their inspiring personal stories, offering encouragement and first-hand insight into getting started and sticking with it.

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Evidence of Program's Success

Since production in October 2013, more than 23,013 copies have been distributed

"After my dad's diagnosis of PD in the fall of 2013, I wanted to find some way to help. In googling the disease, I found your website and ordered the DVD about research and exercise. With that encouragement, I found a personal trainer in my dad's hometown who specializes in PD fitness. Recently this article was written in the local paper about my dad's progress with exercise and a Hershey Medical Center research project.
"Thanks for the info and support for this disease. Keep up the good work!"

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